It’s hard to put “care partner resources” and “dementia resources” in separate silos—there’s an awful lot of crossover. So, consider this a blended family of resource lists, with things I’ve found useful, comforting, informative, hopeful, or some combination of all of that. I hope there’s something here for everyone.
💛 Highlighted items are my favorites.
Websites
- Alzheimer’s Association of America: They cover all kinds of dementia, not just Alzheimer’s, and there’s a 24/7 helpline you can call.
- Alzheimer’s Foundation of America
- Barbara Karnes Books: Pioneering hospice nurse and author of the “little blue book,” “Gone From My Sight”
- Caregiver Action Network
- Daughterhood: Virtual support groups (called “circles”) for people caring for aging parents
- Hilarity for Charity: Virtual support groups for people caring for someone with Alzheimer’s or related dementias, and caregiver respite grants
- Navigating Dementia Caregiving Roadmap: Free download from The Caregiver’s Journey (find it under “Guides and Worksheets”)
- Stumped Town Dementia: From the filmmaker behind “Wine, Women, & Dementia”
- Positive Approach to Care: Teepa Snow is an icon of the dementia caregiving world; courses available
Federal, State, & Local Resources
- Area Agency on Aging: Located all over the United States (search for your state plus “area agency on aging”); resources vary, but may include help with in-home care, transportation, and caregiver respite
- Oregon Care Partners: Free online and in-person classes for family caregivers in Oregon, including Teepa Snow’s Positive Approach to Care
- GUIDE: Free Medicare pilot program for people caring for someone with dementia (Guiding an Improved Dementia Experience)
Podcasts
- All There Is with Anderson Cooper
- Before We Go
- Confessions of a Reluctant Caregiver
- Daughterhood: The Podcast
- Dementia Care Partner Podcast with Teepa Snow
- Happy Healthy Caregiver
- Parenting UP!
- Squeezed with Yvette Nicole Brown
- The Caregiver’s Journey
Books on Dementia, Caregiving, Grief, & Loss
- Being Mortal, by Atul Gawande
- Briefly, Perfectly Human, by Alua Arthur
- Dancing with Rose, by Lauren Kessler
- Dementia Reimagined, by Tia Powell
- Finding Meaning, by David Kessler
- From Scratch, by Tembi Locke
- In Pursuit of Memory, by Joseph Jebelli
- The 36-Hour Day, by Nancy Mace & Peter Rabins
- The Unexpected Journey, by Emma Heming Willis
- Travelers to Unimaginable Lands, by Dasha Kiper
Movies & TV Shows
- A Man on the Inside, Season 1 (Netflix)
- Caregiving (PBS)
- End Game (Netflix)
- From Scratch (Netflix)
- Wine, Women, & Dementia (PBS)